H2O - Health Outcomes Observatory and Aarhus University Hospital hosted an exciting event on 14 November 2023 where we explored the world of patient-reported outcomes. This is the first roundtable discussion of the event, " PROvolution: Redifining Clinical Trials and Clinical Practice with Patient Reported outcomes," with:
Opening: Prof. Tanja Stamm - Head of Institute for Outcomes Research, Center for Medical Data Science, Medical University of Vienna & Meni Styliadou - VP R&D, Data Partnerships, Takeda
Moderator: Prof. Tanja Stamm
Panelists:
• Valentina Strammiello - Director of Programmes, European Patients' Forum (EPF)
• Prof. M. Rose - Professor and Chair of the Department of Psychosomatic Medicine, Charité University Hospital Berlin
• Linetta Koppert, Oncological surgeon, clinical epidemiologist, MD PhD at Erasmus Medical Center (virtual)
• Dr. Simone Lubowitzki - Research Associate, Department of Medicine (Division of Hematology and Hemostaseology), Medical University of Vienna
• Prof. Annette De Thurah Rheumatologist Institute of Clinical Medicine, Aarhus University Hospital
Currently, regulatory-grade tools are unlikely to be used by clinicians as they are not developed with practical implementation in mind. However, clinical tools are just as unlikely to be used in drug development, as they often lack the validity and reliability to support lifecycle and regulatory/access decisions.
We brought health leaders and innovators together for an evening event to see how patient-reported outcomes are reported differently, identify the solutions to address this gap and to discuss who can lead change in the health sector.
H2O is at the forefront of using patient reported outcomes to deliver a positive impact across the health care ecosystem, with the aim to bring people together to transform the use of patient-reported information in health care, enrich the interaction between patient and provider and, as a result, drive better outcomes for patients.
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H2O has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 945345. This Joint Undertaking receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA and Trial Nation and JDRF.
DISCLAIMER: this video reflects only the author’s view. Neither IMI, nor EFPIA, nor the European Commission, nor the JU are liable for any use that may be made of the information it contains.
